The ‘Otherness’ We Experience as a Family With Kids Who Have a Rare Disease

Lani discusses feeling like her family is treated like the “other” and the exception during the pandemic because her kids have a rare disease.

Originally published here: https://themighty.com/2022/01/feeling-othered-prnt-child-rare-disease/

Original post here: The ‘Otherness’ We Experience as a Family With Kids Who Have a Rare Disease